James R. Clark Sickle Cell Foundation
Our consultation is always in sync with your strategy
To enhance the well-being of individuals with sickle cell disease and reduce its incidence through genetic screening, counseling, and education. Educate, support, and re-educate!
Educate, Support, and Re-educate
Patient Registry
“Get Connected” is the Sickle Cell Disease Association of America’s (SCDAA) National Patient Powered Registry. Your voice can inform and support vital research and lead to the development of medical treatments to improve the lives of sickle cell patients.”Get Connected” registry is free and confidential. To thank you for your time, each patient who registers will receive a 10.00 gift card.
About Sickle Cell disease
Sickle Cell Disease is an inherited blood disorder that affects red blood cells and causes organ damage, anemia and lifelong episodes of pain. The disease most commonly effects African, Asian, Mediterranean, Middle Eastern, Central, and South American ancestry. Seventy thousand Americans are currently diagnosed with Sickle Cell Anemia. Sickle Cell disorders have been tested for at birth since 1987.One in ten African Americans has the Sickle Cell trait. Sickle Cell traits are inherited from parents in much the same way as other physical traits. Athough these traits never become Sickle Cell Disease, all in all, knowing if you have the trait is important for family planning.
